Edward Neilan, MD, PhD

Dr. Edward Neilan is the Chief Medical and Scientific Officer at the National Organization for Rare Disorders (NORD®). Ed is a molecular biologist, pediatrician, and medical and biochemical geneticist. He has also worked on many rare disease clinical trials and has contributed to the clinical development and FDA-approval of several new rare disease therapies. Immediately prior to joining NORD, Ed worked at Sanofi Genzyme, where he led global medical affairs for rare neurogenetic diseases and also contributed to clinical development efforts across multiple programs. Prior to that, Dr. Neilan served a term as President of the Medical Staff at Boston Children’s Hospital. In addition to his full-time role at NORD, Dr. Neilan also still maintains part-time faculty appointments at Boston Children’s Hospital and Harvard Medical School.