Agenda

Delivery modes:
  • In-person: This portion of the event is available to registered participants physically at the venue.
  • Public Virtual: Talk is available virtually to registered public and WashU faculty, staff and students.*
  • WashU Virtual: Talk is available virtually to only registered WashU faculty, staff and students.*
  • * Link and password sent via email prior to event.
TimeTitleDelivery mode(s)Location
8:00 – 8:15 a.m.Continental breakfast–Lobby
8:15 – 8:30 a.m.WelcomeIn-person/
Public Virtual		Auditorium
8:30 – 9:00 a.m.A family’s journey with Fragile X
Sara Hamilton
Clinic Manager, Fragile X parent and advocate		In-person/
Public Virtual		Auditorium
9:00 – 9:30 a.m.FDA accelerated approval pathway for treatments
Peter Marks, MD, PhD
Director, Center for Biologics Evaluation and Research		In-person/
Public Virtual		Auditorium
9:30 – 10:00 a.m.[PENDING]In-person/
Public Virtual		Auditorium
10:00 – 10:30 a.m.[TENTATIVE]
A Sibling’s Perspective on Rare Disease
Nathan Grant
Harvard medical student
Sibling of Hunter’s Syndrome patient		In-person/
Public Virtual		Auditorium
10:30 – 11:00 a.mPanelIn-person/
WashU Virtual		Auditorium
11:00 – 11:30 a.m.Break
–
Rare parent meeting		–Lobby
–
3rd floor
11:30 – 12:00 p.m.Poster sessionIn-personGreat Room
12:00 – 2:00 p.m.Lunch + poster talks
8 poster talks: 12 mins each + 3 min Q&A		In-person/
WashU Virtual		Auditorium
2:00 – 2:30 p.m.Break–Lobby
2:30 – 4:00 p.m.Poster talks
8 poster talks: 12 mins each + 3 min Q&A		In-person/
WashU Virtual		Auditorium
4:00 – 5:00 p.m.Reception w/ postersIn-personGreat Room